Out of the Blue

I saw my rheumatologist on Tuesday. She had the results of my most recent blood tests, which were two months old. The shortage of specialists means I only get to see her once every eight to twelve weeks, so the blood tests are always old by the time we review them. In this case, it was only a comparative review. She compared my numbers from July to the first tests I had done in early September of 2013, the tests I had run in January of this year, and the second set of tests I had done in April. There was good news and bad news. The good news is that there are no signs of lupus, which is what my current rheumatologist worried about. The bad news is that with the exception of a slight blip in April, my inflammatory markers and rheumatic factor have not changed since last year. This is despite nine months of treatment with Plaquenil and anti-inflammatories like Mobic and Relafen. I haven't gotten worse, but I haven't gotten better, either. The next step in treatment is Methotr...

On Wednesday, July 31st, I saw my new rheumatologist. The visit went very well. Though the wait to see her was longer, the doctor spent almost an hour with me, took my medical history herself, and asked a lot of questions. She was concerned with the amount of time that had passed since my first blood tests and did not understand my other rheumatologist's reluctance to treat my pain seriously. She declined to prescribe a narcotic, which was fine with me - I have no desire to live in a drug-induced haze. It's bad enough to deal with fatigue-induced brain-fog. The exhaustion makes it very hard to concentrate. She prescribed neurontin, to be taken nightly, and tramadol, to be taken as needed. So far, I've only needed it once. The neurontin has helped my back a lot, and it has the nice side effect of reducing anxiety. Unfortunately, it also has the not so nice side effect of causing nausea and vomiting. However, the vomiting only lasted a couple of days and the nausea seems to...

After my recent bad experience with Prednisone ( Touch and Go ), I have been giving a lot of consideration to alternative treatments and therapies for RA. Medications are wonderful when they work as they are meant to, but the lists of side effects with approved RA drugs are long and frightening. Probably the best of these treatments are the biologic medications - they work in two-thirds of patients, and slow or halt the progression of the disease. The problem is their cost. A year's worth of treatment with Enbrel or Humira could cost as much as $40,000. Health insurance may pay a portion of this cost, but because the expense is so great, most insurance companies require that all other treatment options be exhausted before approving biologics. Plaquenil isn't working well for me - I've been taking it since January and haven't experienced much beneficial change. I am reluctant to try Methotrexate because of it's side effects, which include hepatotoxicity, chronic he...

Those of you who have been keeping up with this blog know about the problems I've been having with my doctor. I made another request this week to get results of my bloodwork, which was taken on March fifth. Yesterday I got a call back from the nurse who told me that the results were back (as if I didn't know that already, it had been a month!) and that my markers hadn't changed much - I showed a one-hundredth of a percent of improvement on my SED rate, but that was all. Then she asked how I responded to the steroid. I reminded her that I had called her about it several times and had left messages to say that it worked pretty well. I also reminded her that the doctor had said I could continue low-dose steroid treatment to help with the pain and inflammation. She replied that the doctor did not continue steroid treatments, despite the fact that they both told me he would. I felt completely jerked around and I told her so, though I used different words. She did not try to ex...

It is 2:40 am as I begin this post, on the first morning after I began taking Plaquenil for my RA. I had the final blood test and the pre-Plaquenil eye-exam last week. The prescription was called in on Thursday and I picked it up late Thursday night. I decided to hold off on taking the first dose until after work on Friday because I didn't want to be sick on the job. Boy, am I glad I held off. About thirty minutes after I took the first dose, which is 300 mg daily, I started to feel a bit itchy. Then a lot itchy. All over. I monitored myself but no rash developed and I didn't have any difficulty breathing or swelling. After another thirty minutes the itching went away. Then the queasiness started. By then it was late, and I was tired, so I decided to go to bed. I went to sleep pretty quickly. And then I woke up. Stomach cramps. Nausea. Just a general icky feeling all over. I stayed in bed for a while and then gave up and got up. Worked on my taxes. Drank some water. Tried n...